Wednesday, June 27, 2012

Sad Days

View from the cemetery where my father's parents are buried

View of the cemetery where my father's parents are buried
It’s been a really rough week.

Saturday we scattered mom’s ashes at the cemetery where my dad’s parents are buried, per her wishes. It’s a beautiful place in the country, with a picturesque view of the land my father’s family farmed for generations. It was a small, simple gathering of just a few family members to say a prayer and say another farewell to their sister, wife, and mother.

Honestly, it wasn’t as hard as I was expecting. Not that it was easy—it definitely wasn’t easy. I cried more than I’ve cried in quite some time. But it was comforting to be in such a peaceful place that I essentially come from, with that small group of people related to me who loved my mother.

Sunday was actually the hardest day for me. I think it was hard for many, many reasons, one of which was that I hadn’t prepared for it. I felt prepared for Saturday, and then it was over, and suddenly there was another day. I didn’t sleep well Saturday night, so that added to my feelings of crazed despair and anxiety. Another problem with Sundays, in general, is that Max typically leaves on Sundays. He offered to stay another day so I wouldn’t have to be alone on Monday, but I didn’t feel like he should miss another day of work right now.

Monday was my mom’s 54th birthday. It was a very difficult day for me, and everyone else in my family. I wanted to take everyone’s advice and “remember the good times” and maybe even celebrate her a little, but it’s too soon for me. So I cried a lot and I missed her.

Sometimes I do the things “they” tell you not to do. I stuff my face when I’m sad. I stay in bed when I don’t feel like facing the day. I ignore phone calls and texts from people who care.

Because the truth is, while I am healing (I feel it happening constantly), I am still so, so sad. I am the saddest I have ever been times infinity. I am so sad I am sick over it.

But I am also doing my best to be healthy. I am exercising, keeping an eye on my diet, spending time with friends and family, writing about it, and I’ve started looking for a new job. I think about my mom and how hard she worked to be healthy and happy, and I think she’d be proud of the steps I’m taking. 

Friday, June 22, 2012

My Mother's Strength (Part 1)


Mom and Dad dancing at my wedding, September 4, 2010


I have been wanting to write this since the beginning of this blog, but I am having a lot of trouble with it.

Why did I name this blog "My Mother's Strength?"

There are a lot of reasons, but one of the bigger ones is that I think so many people, including myself, can learn a lot from the way my mom dealt with her disease, and essentially, her life, as it became more and more a part of who she was.

Cancer doesn’t just grow in your body; it grows in your entire essence. When it metastasizes, like it did with my mom, it wasn’t just in her lung, bones, brain, and liver; it was in her soul. It became who she was. She was no longer Kristie, wife of Kyle, mother of twins, business owner, church member; she became Kristie, cancer patient, wife of Kyle, mother of twins, business owner, and church member.

I think at first, she fought the idea of cancer being part of her identity as much as she fought the actual disease. But eventually, she realized if she didn’t want to be defined by her illness, she needed to meet it most of the way.

After a friend of mine’s mother passed away when her triple negative breast cancer spread to her brain, my mom got really scared. Then she got mad. She found the drive to find another way. She knew chemo made her too sick to go on, and her doctor at KU was not receptive to alternative treatments (or positive thinking, for that matter), so she decided to look elsewhere.

She read books and read about cancer as a cellular process, not just a disease or a tumor to be removed. She learned the ways in which our bodies permit or even promote the growth of these cells, and decided to fight the cancer with everything she had – her entire life.

She learned about the Block Center for Integrative Cancer Treatment in Chicago, Illinois after reading a book written by the founder, Dr. Keith Block. After visiting their website and talking with her insurance company, my mom decided to go to the Block Center. This was a decision I will always be grateful for.

At the Block Center, she was treated with concern and respect, and everyone loved her. She was given supplements and vitamin infusions before, during, and after chemotherapy to help her body handle the dangerous toxins chemo drugs contain. She was told she needed to make drastic changes in order to live. She made them.

She began a vegan (except for certain fish), bleached and processed flours and sugar-free diet. It was maybe the hardest thing my mom ever did. However, it changed everything, and she lived.

She continued chemo for years, and fought the cancer hard. She started practicing Yoga, having laser therapy to deal with her uncomfortable and scary neuropathy, and even having her chakras aligned regularly. She started exercising daily and even worked with a personal trainer, and for the first time in her life, found control over her weight – something that had plagued her for her entire adult life.

And she prayed. And you prayed. And you sent positive thoughts and love. And she lived.

We had at least three more Christmases than we were supposed to. She was able to attend my wedding and see Kassie’s dreams come true with her career and meeting and getting engaged to Travis.

When people say that my mom “lost” her battle with cancer, I want to correct them – she lived longer and better than anyone ever expected or even dared to hope for. And because of that, she was able to inspire us and teach us what it really means to be strong. 

Thursday, June 21, 2012

Friends (Part Two)


Me and many of my girlfriends at my bachelorette party in Kansas City, September 2, 2010.


In addition to my mom’s friends who are really like second mothers to me, I have my own wonderful friends. Not all of them are women. Having a guy who isn’t family OR romantically interested in you worry about how you’re coping is a really interesting experience for someone who typically surrounds herself with girlfriends.

I’m used to being the worrier. I’m worried about everyone, all the time. I’m worried about my friends, their decisions, their boyfriends/girlfriends, their families, their jobs, etc. This isn’t to say that I’m a nervous wreck all the time. In fact, a lot of my friends are in great places in their lives, loving their jobs, newly married, and/or new homeowners. I’m excited for them! But I want their happiness to last. So I worry.

I’m not used to people (other than my mom) worrying about me. Or I should say, I’m not used to knowing about people worrying about me –  I’m sure people have worried about me my whole life (and I’ve given them plenty of reasons!) but it’s mostly been that quiet, observational worry that I have for my friends, where concerns are rarely voiced, and the worries  mostly come from hope.

Over the past month and a half (and before), I’ve experienced an amazing exhibition of love from my friends and their families. My family and I feel so encouraged and supported by all of the phone calls, texts, emails, and hugs. But it’s more than just support and encouragement for me. In a way, I feel like my broken heart has been spewing sadness, anxiety, loneliness and a little despair everywhere. My friends are applying pressure to this figurative wound by taking me out to movies or for drinks, calling to check on me, going shopping with me, or just hanging out with me.

My friends loved my mom. To them, she was a strong, independent woman who owned her own business, battled a terminal illness, and worked every day to be as strong as she could be so she could stay here with us for as long as she could. I think a lot of people really looked up to her.

Whether you’re for Nature or Nurture, my mother holds the key to half of who I am genetically, and most of who I am emotionally and mentally. I am who I am because of her. So much of the good is from her, and even some of the bad.

My friends love me. There is no doubt. I worry about exhausting them with my tears and anxiety, but I know that isn’t going to happen anytime soon. I know that if I’ve had a rough day, or a rough three days, all I have to do is scroll through my phone or Facebook, and there are a dozen or so people who would be happy to talk, go for a drink, watch a movie, or just sit with me. This knowledge adds security to my life, and is a reminder that not everything is bad or wrong.

Thank you for the love, hugs, and perspective, ladies (and a few gentlemen).

Sunday, June 17, 2012

(Happy) Father's Day


Mom and me, Kassie and Dad
My dad hasn’t always had an easy life, but is always grateful for what he has, and doesn’t complain when things are difficult, because to him, there isn’t a point to complaining. I’ve heard him say “well, that’s life” in response to worries, complaints, or criticisms voiced by my sister or me. And it’s true, as we’ve all learned at one time or another – life is definitely not fair. Life is tumultuous and full of unexpected twists and turns, yet so many of us fight these unwanted shifts and turns and find ourselves depressed or anxiety-ridden when circumstances change. Not my dad.

This is not to say that he doesn’t feel the pain of loss or change. I told you – he is surprisingly complex. I believe he feels these things just as much as anyone else might, but with one difference – he doesn’t indulge the childish voice inside that constantly reminds us, in that whining, sad voice, “it just isn’t fair.” No, it isn’t. But “that’s life.”

Father’s Day is a difficult holiday for my father. His father, my granddad, passed away Father’s Day weekend of 1990. When Dad reminded me that it had been twenty-two years since Granddad died, I was shocked. I audibly gasped. I don’t have a lot of vivid memories of Granddad, but I have a lot of feelings associated with him. When I think of my Granddad, I remember feeling secure, special, and loved. I also remember that it was important to mind my manners and be good, or I would be in big trouble. Much like my own father, Granddad never yelled, and I only have one memory of ever seeing him angry.

I don’t know for sure how old we were, but we couldn’t have been older than three years old when Kassie, Granddad, G-G (what we called my dad’s mom) and I went to Wendy’s for lunch after church. I was so upset that Kassie got to sit by G-G, that when Granddad wasn’t looking, I decided to crawl under the table to G-G’s side. I didn’t make it very far. He grabbed me by the belt loop on my jean shorts and pulled me back out from under the table, swatted me on the rear (in front of everyone!) and made me sit by him the rest of the meal. I was so surprised! My family and I laugh at this memory because Granddad didn’t really tend to get angry (much like my father), so he must have been pretty angry at me that day if he felt the need to spank me in public.
Mom and Kassie, Granddad, G-G, Dad and me
 Another memory took place at their house in the country. They had a pretty big yard next to some railroad tracks and a farm with horses. There were some huge trees in the yard that my sister and I spent hours playing under and climbing. One afternoon when I was three or four years old, I was climbing one of the trees and slipped, landing on something soft. The air was immediately filled with the sounds of screams.

I’d landed on a rabbit. If you have never heard a rabbit scream, you are lucky. The rabbit was fortunate that day because I was still pretty small at that point. He scurried away and got stuck in a basement window well. I was so upset and worried about the rabbit. Granddad calmly put on his medal-working gloves, while explaining to me why it wasn’t ok to pick up a wild animal with your bare hands, and rescued the rabbit. He let me pet him and apologize to him, and then he took him to another shady spot away from where we were playing and let him go.

My dad is a lot like Granddad. I remember lots of times when my sister and I were little when my dad would explain things to us, show us how things worked, or tell us stories. He was and is always calm and patient. I was (and am) very much my mother’s daughter, but as I’ve gotten older, I have started to appreciate more and more his perspective on the world. We don’t see eye-to-eye on many things (like politics and religion), but he is a gentle soul who bases his entire worldview on doing what’s right, even if it is hard or impossible.

Being a good father is about so much more than paternity. My sister and I are so blessed to have a father who has cared for us, provided for us, nurtured us, looked out for us, taught us, and loved us through everything (which I imagine was not always easy with twin girls – especially through the teenage years). We were so lucky to have parents who epitomized the ideal of marriage and being in love with one another until the end and beyond.
Dad and Mom on their wedding day, December 18, 1976

Tuesday, June 12, 2012

Ok Today


Dad, Kassie, Mom and me at the church Kassie worked at in Springfield, MO.

There is a song by Ingrid Michaelson called “Be Ok” that I actually found pretty obnoxious until recently. Suddenly, I can relate:

I just want to be ok, be ok, be ok
I just want to be ok today
I just want to be ok, be ok, be ok
I just want to be ok today

It is a plea. The catchy, upbeat melody disguises it so that maybe it doesn’t sound very dire or desperate, but the words are definitely desperate. I just want to be ok—Not “good” or “great,” but just “ok.”

For a long time, I’ve wanted to be ok. I don’t dare ask for more than that. “Ok” would be such a relief.

It is hard to believe that I’m typing this, especially after the past two entries, but today, I was ok.

Not good.

But, not bad, either.

I missed her a lot today, but I didn’t cry. I didn’t meltdown. I didn’t panic. I didn’t throw anything.

I applied for jobs, went to the gym, ran some errands, spent time with Murphy, and relaxed with Kassie’s best friend, Mary. I’m about to make a dessert that will prove my efforts at the gym futile.

It was kind of neat that when people asked me how I was doing today, I could honestly say “ok.”

Monday, June 11, 2012

Anger


Mom and me last October, celebrating with Kassie and me for our birthday
I've held it together really well today, but underneath, I’ve been feeling really, really angry. This isn't new – I've been angry a lot in the past several years, and especially during the past weeks. I've yelled at people I love, I've gestured at frustrating drivers, and I’ve screamed into my pillow until I didn't have a voice. I even threw a plate and watched it shatter into hundreds of pieces while arguing with someone very dear to me.

I’d started to mellow over the past couple of weeks, but for some reason, the past three days have been very frustrating and hard for me to remain calm. I am not what you would call a “calm” person. I react to things quickly and passionately. But I’ve never had a problem with my temper before. I tend to become upset or sad rather than angry when things don’t go my way. But all I know is that today I just want to scream and throw something heavy and breakable into a brick wall.

Why?

Because it isn’t fair.

You can’t get more basic (or childish) than that.

Over the weekend, Max and I went and saw The Avengers for the second time. He loves comic books and super hero movies. I love Thor/Chris Hemsworth.

There is a scene – and I don’t want to spoil it for anyone, but if you haven’t seen it yet and plan to, that’s not my fault—where Captain America tells Dr. Banner/The Hulk, “Doc, I think now is the perfect time to get angry.” Banner responds with, “That’s my secret, Cap; I’m always angry.”

That exchange has stuck with me. I’m not saying that I’m going to turn into The Hulk, but there are times when my rage swells and I feel the possibility.

I am angry that I can’t go out to lunch at Einstein Brothers with my mom. I’m angry that I can’t text her that Lindsay and Matt are having a girl, that JC Penney is going back to their original “sales all the time” format, that I want to start a business, that I miss her, that Murphy is healing really well... I’m so, so angry that she hasn’t been here for Kassie’s graduation, ordination, new house, and first Sunday at her new church, and won’t be here for her wedding. I want to scream when I think that she won’t be here to give us advice about children or marriage. I want to break things when I think about my father retiring in a few years and not being able to share it with my mom.

None of it is fair, and right now I feel that I’ll probably always be angry.

Saturday, June 9, 2012

Panic


This morning I hauled my butt out of bed and went to Power Yoga at the Y. I am extremely out of shape and about as flexible as a wooden board, but my newly-hired personal trainer said she always attends this class and would help me out. So I thought, why not?

After an hour of impossible stretching and bending, including many modified poses due to my knees’ refusal to straighten and my hips’ screams, I felt physically satisfied, but I was crying in my car. A few of the women there knew my mom, and had just found out about her death. They had questions and wanted to share their condolences. I was completely unprepared. I had expected to come to class, talk with my personal trainer, torture myself for an hour, then go home and make lunch. I wasn’t ready for the questions. I wasn’t prepared for the condolences.

So, I cried in my car for a little while and successfully talked myself out of a panic attack.

Since my mom passed away one month, two days, twelve hours, thirteen minutes and 22 seconds ago, I have had approximately 9 panic or anxiety attacks. It doesn't take much to set me off - a memory, a conversation with someone about my mom, sometimes just thinking of something I wish I could tell my mom about will do it. Before that, I’d had about 7 in the past two years.

I have had a lot of problems with anxiety and panic in my life. A lot of it started because I was teased in school for being overweight. Tears come quickly and easily to me, so I would hold my breath and hold them in until I could get to the bathroom, or until it was time to go home. The only thing worse than being picked on when you’re a little fat girl is being picked on and then letting them see you cry. Assholes.

One day, in the second grade, we were having an indoor recess because of a storm. There were three classrooms-worth of second-graders in one classroom to watch a movie. No one wanted to sit by me, and I ended up having nowhere to sit at all. One of the other teachers (not mine) said that if I didn’t sit down by the count of ten, I’d lose recess the next day. I crawled under a table. They turned the lights off, and under my table, it was very dark. All I could see were the backs of my classmates who would have nothing to do with me, sitting on the floor, watching a movie while it stormed outside.

I panicked.

I started to hyperventilate and sweat. I was crying and choking on my snot and tears. I was dizzy and my legs wouldn’t work. My teacher dragged me out from under the table by my arms and carried me to the nurse. She was barely five feet tall and probably didn’t weigh much more than I did! My mom came to get me and took me straight to the doctor, who informed us that I’d had probably had an anxiety attack.

My mom didn’t make me go back to school that day. We went to McDonald’s and I got a Happy Meal and then we went home and I played with my Barbies. She asked me why I thought I got so upset, and I said I thought it was because I didn’t have any friends and that no one liked me because I was bigger than them. I remember she cried and I felt bad for making her cry.

The truth is, I did have some friends. But I didn’t have a lot of friends until a few years after this incident. I had a couple of good, close friends, but not enough who weren’t afraid of the girls who made it their mission to humiliate me every day.

Ever since then, I’ve been prone to having “freak-outs.” Usually at night. I’ve been in therapy for many years off and on, and I have medication that helps. But sometimes, I let things build up too much because I still don’t want to let them see me cry.

Another major “freak-out” happened during my last semester of college. I was taking a lot of challenging classes, trying to decide what to do after college (which, three years later, I still haven’t decided), planning my wedding, and my mom’s cancer had just returned with a vengeance. I was a mess. I was driving to school where I was supposed to give a ten minute presentation about something I don’t remember, and I was talking to my mom on my cell phone about how much of a mess I was. That’s when I saw the flashing lights in my rear view mirror. How fast was I going? Let’s just say I avoided having to go to court by only two miles per hour. I hung up on my mom and waited for the officer to get out of his car and come to my window. I hadn’t put my new insurance card in my wallet or car yet, so I texted my roommate that I’d been pulled over and asked if she hadn’t left for class yet, if she would mind grabbing my new cards and bringing them to me. As I waited, I became increasingly agitated.  I was going to be late for my presentation. Everything sucked.  I had no money to pay a stupid speeding ticket. Didn’t he have anything better to do than make an ordinarily-law-abiding citizen sweat it in her car?

I panicked.

By the time he got to my window, I couldn’t talk. I was hyperventilating, and couldn’t tell him what was wrong. I could only nod or shake my head. He asked me to get out of the car, and my knees immediately buckled. He told me wait in my car.

Less than five minutes later, I heard sirens. Lots of them. Looking in my rear view mirror, I saw a fire engine approaching.

What? Why?

Right behind the fire engine was an ambulance. Behind the ambulance was another police car with two police officers in it.

Oh my God.

They pulled over right behind the cop, and suddenly, my car was engulfed in a crowd of men. There were four firemen, two EMTs, and three police officers surrounding me, asking me questions, taking my blood pressure, and offering me a bottle of water.

I panicked again.

At this moment, my roommate showed up among the chaos, with a look of panic on her face. I grabbed her hand and forced myself to breathe. After several moments, I managed to get the words out to tell her that I’d had a panic attack and the police officer had called the ambulance and fire engine. She was amazed. I was embarrassed and still panicking. She sat with me while I refused medical attention and refused to go to the hospital. I didn’t need a $300 emergency room visit just to have an irritated doctor tell me I needed to take some deep breaths.

Eventually, all nine men dispersed, leaving my roommate and me alone. I had missed my presentation.
Oh, and the original police officer still wrote me a speeding ticket.

My anxiety or panic attacks have become a lot easier to predict and deal with in the past two weeks, thanks to therapy, medication, writing, a regular sleep schedule, and distance from the night my mom died. I’m trying to keep as many things in balance as I can, especially while I’m not working. I hope I can get back to less than ten attacks every couple of years, but I also know that getting irritated, annoyed, or upset about having them just makes them happen more often, and with greater intensity. Sometimes you really do just have to take some deep breaths and make peace with the things you can’t control, because trying to control them is only a waste of very valuable energy.